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101 hakuosumaa
Neverending story
I remember that movie and I liked it when I was little. Back then I never thought that the title of that movie would become a part of my life. It did and I don´t like it. The wounds that were already ...
25.11.2012 | Kommentteja 0 |
Tinkerbellin Helinää...
Storms
We have a lot more snow than the picture shows. We have had many snow storms and the scenery is getting more and more white. On a sunny day it´s beautiful to look at, other days not. Snow every...
28.02.2012 | Kommentteja 0 |
Tinkerbellin Helinää...
Early in the morning
What do you do when you wake up at four am? Usually for me it means writing. I am doing my Bachelor´s thesis and some days there is a clock inside me that wakes me up at four am. At this point, it is...
21.09.2011 | Kommentteja 1 |
Tinkerbellin Helinää...
Back in business
Another attempt to taper pred under 10 mg. So far so good. Had a few rough days but they are past now. To make things more complicated, I broke my foot again. Same foot, same fracture that was almost ...
27.07.2011 | Kommentteja 0 |
Tinkerbellin Helinää...
The key question
My therapist asked me the question I knew was coming and I have been thinking about it too. When are you going to start think about your life and how you want to live it? I could tell she was pleased ...
14.05.2011 | Kommentteja 0 |
Tinkerbellin Helinää...
Two steps back
I took many steps forward and now I´m taking two steps back. PM is giving me signals. A little temperature, muscle pain and fatigue. Actually I´m not suprised. Last weeks have been emotionally very he...
09.04.2011 | Kommentteja 1 |
Tinkerbellin Helinää...
I welcome you, summer
It has been a while since I wrote here in English. I guess it´s about time I correct the situation. PM has been under control for quite some time now. I´ve been able to taper pred to 7,5 mg / day. It ...
15.03.2011 | Kommentteja 1 |
Tinkerbellin Helinää...
Busy, busy, busy...
Or am I? PM has been riding a rollercoaster again. It has changed. I don´t know why or is it for better or for worse? I have been fighting back. I refuse to let it take the power from me. The fever c...
19.12.2010 | Kommentteja 1 |
Tinkerbellin Helinää...
Finally over
One phase in my life is finally over. Thank God! It gave me a huge amount of stress and worries. Like I didn´t have enough of them already. Now it´s over and I´m happy with the results. They were wh...
19.10.2010 | Kommentteja 2 |
Tinkerbellin Helinää...
Round and round, up and down
Rollercoaster is on the move again. My body just realized that I have tapered pred to 10 mg. The magical dose. Only once I have been able to go under this dosage. Thumbs up for no flare. It is define...
18.09.2010 | Kommentteja 0 |
Tinkerbellin Helinää...
Me, myself and I
I was accused of being selfish. I didn´t think of anyone else but me. I disagreed then and I disagree now. I could´ve written Freedom to the headline. I think that word describes better for what I am ...
24.07.2010 | Kommentteja 1 |
Tinkerbellin Helinää...
Burning bridges
In some way I can understand if you want to burn some brigdes behind you, but I think burning all of them is almost mission impossible. Your past will catch up on you sooner or later. Especially if yo...
07.06.2010 | Kommentteja 0 |
Tinkerbellin Helinää...
Can I skip the last couple of days?
They have been really exhausting and I just wish I had at least one day without any worries. A dear friend of mine lost his son yesterday. Every mothers nightmare. I can offer my sympathies but it fee...
27.05.2010 | Kommentteja 0 |
Tinkerbellin Helinää...
Ärsyttää
Ihanan aurinkoinen päivä ulkona ja minä herään neljän jälkeen horkassa ja 38 asteen kuumeessa. Tee siinä sitten pihatöitä. Oli vielä erittäin sitkeä pirulainen, kun vaati paljon buranaa, että suostui ...
25.04.2010 | Kommentteja 0 |
Tinkerbellin Helinää...
Trip down the memory lane...
At first, sorry everybody, I haven´t written here in English for a very long time. I have just been too busy, too tired and too everything... Polymyositis is still under control. Pred is tapered ...
26.03.2010 | Kommentteja 0 |
Tinkerbellin Helinää...
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